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Disability Mailing Lists:
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Disability Mailing List M-RTopics beginning with the letter M - RTOPIC: Independent Living ACCESS Dedicated to closed-captioning, audio description, and other Media Access issues. BUDDY-L List for guide dog users SERVICE-DOGS Anyone interested in training or using guide, hearing or other assistance dogs TOPIC: Klinefelter Syndrome KLINEFELTER-L This discussion list was created to exchange any ideas, information, news, comments,
gripes, fears, or whatever, related to Klinefelter Syndrome. The list is a place to
discuss issues, to give and receive support, and to post information about the syndrome
and how to live with it. TOPIC: Learning Disabilities ld-list Learning Disabilities LDWOMEN A list for adult women with learning disabilities. Its purpose is to provide a forum
for women with learning disabilities to connect and share ideas, knowledge, and support. TOPIC: Liver Diseases LIVERSUPPORT-L Chronic Autoimmune Liver Disease Support Group PBC/PSC The "Primary Biliary Cirrhosis & Primary Sclerosing Cholangitis"
Emotional Support Group is open to all "PBC & PSC" Liver disease sufferers,
their family members or those wanting to learn more about these two liver diseases. TOPIC: Mastocytosis TMS-L The e-mail discussion list of The Mastocytosis Society, Inc. TOPIC: Menieres Disease Menieres Discuss tinnitus, vertigo, hearing loss and more: Meniere's Disease TOPIC: Mental Health AFFECTD Affective-Disorders discussion list ANXIETY-DEPRESSION-YOUTH An exchange of ideas, opinions, and information amongst those involved in research and
clinical practice in the areas of child and adolescent anxiety and depression. The group
is an interdisciplinary one involving a variety of mental health professions. ANX-DIS Anxiety Disorders ANXIETY-L
BEHAVIOR Behavioral/Emotional Disorders in Children BORDERPD Borderline Personality Disorder Support Group BRIDGE-FEED Freedom Exchange Eating Disorders - Support Group CANDID-DEMENTIA Discussion forum for professionals involved in research into dementia and allied
disorders CLINIPSY A list for the world-wide community of clinical psychologists to share ideas and data
in the area of clinical psychology. DENDRITE A low-volume, ONE-WAY mailing list with human rights alerts about people with
psychiatric labels DISSOCIATIVE-DISORDERS Dissociative Disorders Discussion EAT-DIS Exchange of ideas, opinions, and information on clinical and research aspects of
anorexia and bulimia nervosa, obesity, and other atypical pattens of eating behavior. HEALING Healing: survivors of intimate abuse HEALNORM The human rights of people with psychiatric labels. IPN The mailing list of the InterPsych newsletter PSYCH-DD Basic psychological and behavior analytic issues in DD PENDULUM Bi-polar depression Psychiatry & Psychology
SCHIZ-L Schizophrenia Research List SCHIZOPH Schizophrenia Discussion Group SELF-HELP Self-help list to raise the self-esteem of subscribers SOCRATES International list for persons interested in the theoretical and philosophical
foundation of psychology. Walkers Unipolar depression OCD-L Issues concerning obsessive compulsive disorder. XN-DEPRESSION The ORIENTATION of the list has been re-defined to be CHRISTIAN in orientation, and
ecumenical in expression. TOPIC: Metabolic Disorders IEM The Inborn Errors of Metabolism Family Support List. For discussion and support of the
families with kids or adults having IEM. Those who have these problems are also welcome to
participate. Discussions can be about technical information, medications, sources of
support, daily problems or anything effecting the family and patients life. Professionals
in the field are welcome to join the list, participate and contribute. INBORN-ERRORS The intention is to provide a discussion of research into Inherited Metabolic Diseases,
which can be important causes of disease in both children and adults. The discussion will
include: a) Biochemistry and Diagnosis b) Genetics c) Clinical, nutritional and treatment
aspects d) General discussion. METAB-L Inborn Errors in metabolism discussion list for researchers. METABOLISM Professors Pediatric Neurology, European Union. This list wishes to promote research
and clinical exchanges concerning metabolic disorders between and among pediatricians,
pediatric neurologists, biochemists and other specialists. It provides also a forum for
the discussion of organizational matters concerning the development of Units for Metabolic
Disorders in academic centers. TOPIC: Myeloproliferative Disorders
MPD-SUPPORT-L Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport, offers MPD-NET This list is a support/discussion group for patients with myeloproliferative disorders
(polycythemia vera (PV), essential thrombocytosis (ET), myelofibrosis (MF), agnogenic
myeloid metaplasia (AMM), myeloid metaplasia (MM) chronic myelogenous luekemia
(CML) and
myelodysplastic disease (MDS). Families, friends, doctors and researchers are welcome to
participate. CML-TALK Internet mailing list for people interested in Chronic Myelogenous Leukemia. TOPIC: Neurological CHARI Arnold-Chiari Malformation Discussion List CHILD-NEURO-PARENT For parents of kids with neurological problems NEURO-BR A moderated discussion list on neurology. It will be open to any professional that
works in neurology or to any field that may be of interest to neurology. Preferred
subjects should be related to: news in neurology (research, imaging, genetics,
publications, etc.), prevention of neurological disease, treatment of neurological
disease, rehabilitation of neurological patients. Shy-Drager Syndrome (Multiple System Atrophy) To subscribe send an e-mail message to: STROKE-L Strokes STROKE-BR A moderated discussion list on stroke and cerebrovascular disease. It will be open to
any professional that works with stroke patients. Preferred subjects should be related to:
related diseases, causes, prevention, treatment, rehabilitation. TBI-SPRT St. John's University Traumatic Brain Injury Support Group List TOPIC: Neo-natal UCIN-NET A Spanish forum for discussion of neonatal intensive care issues between
neonatologists, pharmacists, respiratory therapists, nutritionists, ethicists, nurses, and
OT/PT. TOPIC: Neuro-Stimulators NEURO_STIM A list for people with disabilities who use neuro-stimulators to help various movement,
pain, and seizure disorders. TOPIC: Nurses CNS-L Clinical Nurse Specialist Interest Group NURSENET A global forum for discussing nursing issues NURSERES Discussion list for nurse researchers NURSELRC For nursing Learning Resource Centre faculty and staff to network about psychomotor
skill acquisition, care and maintenance of equipment, instructional strategies, computer
and audio-visual resources and funding sources. PARSE-L Parse's Nursing Theory PNATALRN On-line resource for networking with perinatal nursing colleagues, in the areas of
perinatal nursing practice, education, and research. RN-JOBS Information concerning professional nursing employment RN-TRAVEL Discussion of general issues relating to being a traveling RN. TOPIC: Parenting a child with
disabilities CARINGPARENTS A list for any adult who wants to talk about how kids cope with serious illness.
Members include parents and other caregivers of very ill children, seriously ill adults
who have or know children who are concerned about them, health services professionals, and
other adults with a special interest in helping kids cope with illness. CARINGKIDS A list for children who know someone who is seriously ill. CHOICES An open list for parents, family members, caregivers and others who wish to discuss the
difficult choices faced in caring for a child with special needs. Topics may include but
are not limited to: residential placement, controversial education/therapeutic methods,
abortion/euthanasia, puberty and sterilization and any other aspect of loving and/or
living with a child with special needs. DADVOCAT Fathers of children with disabilities. DIS-SPRT St. John's University disability support of families list LOSTANGELS Families to discuss the sensitive issues raised when one (or more) of a multiple set
dies (at anytime after conception). OUR-KIDS Parents of children with disabilities SICKKIDS A list for children who have serious illnesses. TEAMWORK Discussions of all aspects of family life that are affected by the disability of one or
more family member. TOPIC: Physical Disabilities BIFIDA-L Spina Bifida/Hydrocephalus C-PALSY St John's University Cerebral Palsy list MD-LIST Muscular Dystrophy MOBILITY SJU Mobility Disabilities list MSLIST-L Multiple Sclerosis Listserv POLIO SJU Polio and Post Polio Syndrome List POLIOLIFE An unmoderated, user maintained list dedicated to exploring the full range of ideas and
activities of persons who have survived polio. PPS Post polio survivors RSI-EAST St John's University Repetetive Strain Injury List SB-Parents For people interested in the care of children who have spina bifida SCIPIN-L Spinal cord Injury Peer Net TMIC-LIST A forum for people to communicate with others about Transverse Myelitis QUAD-LIST For quadriplegics to communicate with others who share the same condition. VENT-USERS For people who require a ventilator (respirator) to breathe to be able communicate with
others who share the same condition. TOPIC: Rare Disorders ANGELMAN A list for parents of children who have Angelman Syndrome CDGS Carbohydrate-Deficient Glycoprotein Syndrome discussion list. CSHCN-L Children with special health care needs EDS Ehlers-Danlos syndrome mailing list MICROCEPHALY This list deals with all things related to Microcephaly. At this time it is run
manually. PRADER-WILLI SYNDROME ONLINE NEWS DIGEST
RARE-DIS St. John's University Rare Diseases List RARE DISEASES Rare Diseases RETTNET Rett Syndrome List TOPIC: Rehabilitation ICACBR-L Community rehab program for persons with disabilities REHAB-RU Physical medicine & rehabilitation, especially in rural areas SCR-L Cognitive Rehab TOPIC: Research DISABILITY RESEARCH LIST
DISRES-L Research & Disbability Page updated: 04/07/2008 |
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